DWF MDR-TB ambassador to feature in new Lilly film
XDR-TB survivor Xolelwa Joni (left) chats with her elder sister Fezeka Joni (middle) and Thandekile Essien (right), Programme Officer for Lilly SA’s MDR-TB Partnership in the yard of her Duncan Village home. Photo – Barbara Manning
Soon the world will hear the incredible story of former Donald Woods Foundation peer-educator and XDR-TB survivor, Xolelwa Joni, who hails from Duncan Village in East London.
Earlier this year Xolelwa shared her story on her two-year struggle to beat extensively resistant tuberculosis (XDR-TB) with the Lilly South Africa team in Johannesburg. As if the onerous treatment was not enough, Xolelwa also had to contend with family tragedies during her treatment as she battled to cope with the loss of her twin sister who succumbed to XDR-TB and her mother’s death due to cancer.
Lilly colleagues were so moved by Xolelwa’s story that Lilly has commissioned a new film based on extensive interviews with Xolelwa at her Duncan Village home. During the filming of the interview in early May, the crew learnt of additional family tragedies in that out of five siblings, Xolelwa and her 36-year old sister Fezeka Joni have lost three siblings – Xolelwa’s twin sister, a brother to illness and two brothers were murdered in crime-related incidents in the area.
The film is in the final stages of editing and is nearing completion.
Xolelwa is currently studying nursing at Butterworth Hopsital, a vocation she yearned to undertake following her struggle with XDR-TB and her work as a DWF peer educator with the DWF MDR-TB programme in East London.
Xolelwa said she was keen to address the stigma attached to TB:
“People judge those infected with TB and the disease breaks the bonds of family and friends. This is a big issue that sufferers have to deal with and I hope to help people with TB as I can speak from experience.”
DWF has partnered with Eli Lilly in the Lilly MDR-TB Partnership since 2014 screening for TB and providing follow-up support as part of the Health in Every Hut programme in rural areas together with numerous TB hot-spots in the greater East London metropolitan area such as prisons, taxi ranks, schools and Nkqubela TB Hospital in Mdantsane.
Links for the final film will be posted in due course.